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The Bridge
News from the Arizona Bridge to Independent Living
Volume XIV, Number 8
August 2003
ABIL offers and promotes programs designed to empower people with disabilities to take personal responsibility so they may achieve or continue independent lifestyles within the community. ABIL is a member of the National Council on Independent Living (NCIL). "Not just responding to change, but leading it!"
(Special Bridge insert at the end of document on Emergency Preparedness)
Let's Keep Moving! By Donna Kruck
The Transportation Policy Committee (TPC) has been charged with developing a transportation plan for Maricopa County to take to the voters next year. Voters will get to decide whether they are willing to extend a current 1/2 cent tax for regional transportation improvements. We are nearing the end of a 20 year sales tax that has supported the freeway improvements we are enjoying now. The TPC is made up of Mayors and other community leaders who have been meeting to develop the plan. The public will get a chance to comment on their plan proposal later this summer (see below), before it goes on the ballot. I have been attending most of their meetings and find it very reassuring to hear how much they support a multi-modal plan that includes regional public transit improvements over the next 20 years. The plan includes expansion and improvements for freeway, roads of regional significance, bus, Dial-a-Ride, rapid bus transit and light rail. Each community has a different need and focus, so the plan will try to meet the Valley-wide community needs.
Tempe Mayor Neil Giuliano is the committee Chair. At their July 22nd meeting, they will need to reach consensus on a draft plan, so that they can submit the plan for a 30-day review by city partners and the public. Any revisions to the plan must be completed by the TPC's September 17th meeting, which is when the final plan needs to be approved so that it may undergo air quality testing. It is very important that you attend the public meetings below so that our voices are heard and you know what the plan is.
Meetings for Public Comment on the Regional Transportation Plan
(Central) Tuesday, August 19, 5-7 PM,
Burton Barr Central Library,
Pulliam Auditorium, First floor,
1221 N. Central Ave
(Southwest) Wednesday, August 20, 5-7 PM,
Public Safety Building, - Second Floor,
1825 North 107th Avenue, Avondale
(Northwest) Thursday, August 21, 5-7 PM,
Midwestern University, Agave Hall,
19555 North 59th Ave., Glendale
(Southeast) Wednesday, September 3, 5-7 PM,
Mesa Centennial Center Superstition North Ballroom,
263 North Center Street, Mesa
(Northeast) Wednesday, September 10, 5-7 PM,
Community Design Studio, Nave Room,
7506 East Indian School Road, Scottsdale
ABIL will be working to help pass the extension of the 1/2 sales tax because it will improve regional public transit options for individuals with disabilities Valley-wide. We will keep you posted. If you want to join our transit email alert list send an email to me at donnak@abil.org.
The "Let's Keep Moving E-Update" is a monthly electronic newsletter providing information about the Transportation Policy Committee and the development of the Regional Transportation Plan. For questions regarding this publication, or to be removed from the distribution list, contact Kelly Taft at (602) 254-6300, or via e-mail at ktaft@mag.maricopa.gov
Will Medicare Prescription Coverage Benefit You?
Phil Pangrazio, ABIL Executive Director
Are you waiting anxiously for Medicare prescription drug coverage? Are you convinced that, if enacted, the plan will benefit you? If you are not certain, I suggest you read on. The proposed prescription drug plan for Medicare beneficiaries is the largest government entitlement program introduced in years. Not since Hillary Clinton tried to champion universal health care reform in 1994 has such a buzz been generated in Washington. If you are a senior or person with a disability, you should be paying close attention to the debate. In fact, you ought to be calling your Arizona Congressperson and telling them what you want. But what do you want? Let me fill you in on some of the issues.
By all reports, the issue is complex and the best solution depends on your political leanings. The republican administration wants to take credit for passing a prescription drug plan before the 2004 election. This would clearly bolster President Bush's domestic policy record. The democrats would hate to let this happen and would prefer to wait and claim for themselves this historic piece of legislation. However, they recognize it might be better to "seize the moment" and get what they can now. No matter what your political affiliation, the cost of such a benefit will not come cheap! Early estimates place the cost at $400 billion over 10 years. Some believe it will be at least twice that amount, if not more.
In case you haven't been paying close attention to the details, here's a sneak preview. In late June, separate bills were passed by both the Senate and House. Although both are similar, the Senate version looks something like this: For a monthly premium of about $35, seniors would pay an annual deductible of $275 and then 50 percent of the first $4,500 in drug costs. Then they would pay the entire cost for expenses between $4,500 and $5,800 (this is known as the infamous, "hole in the donut"). And above that amount, coverage would be 90 to 100 percent. Under this plan, many beneficiaries, including people with disabilities, won't get the savings they are expecting. In fact, many will pay more than they currently do.
Other components of the plan include proposals to allow for program administration by private insurance plans underwritten by the $400 billion in federal spending. Democrats aren't too happy about this and are calling for guarantee fallback plans for underserved areas. Remember the Medicare HMO's that pulled-out of our rural communities in Arizona? That's exactly what many are afraid will happen under privatization. Specifically, Mrs. Clinton has questioned the private sectors staying power when it comes to insuring seniors. She claims, "its unlikely to be a profitable business to insure the sickest, oldest Americans for their drug cost."
Still others are concerned that corporate retirement plans will drop their prescription drug coverage once a Medicare plan is in effect, further shifting their health cost burden to government. It is estimated that millions of seniors will lose drug benefits they previously received through their former employer.
Maybe most important, however, is that neither of the current bills include any income testing as a condition of eligibility. Many Republicans, including Arizona's Senator John McCain and Representative John Shadegg, are calling for just that. They believe the program should focus only on lower-income seniors and the catastrophically ill. They oppose a drug benefit for all Medicare beneficiaries, regardless of their financial means (i.e. wealthy seniors). Democrats oppose means testing because they feel such a measure will weaken overall support for the program, especially from groups such as the AARP and the upper middle class.
Bargaining over the details of a final bill is now occurring in the House and Senate conference committees. The Bush administration wants to sign something into law by July 31st or soon thereafter. So, if you have an opinion, especially about privatization and income testing, I encourage you to let your voice be heard!
The Bridge available by e-mail!
To receive The Bridge by email automatically each month, send your request to: azbridge@abil.org or by mail to Penny c/o ABIL, 1229 E. Washington Street, Phoenix, AZ 85034-1101, or call (602) 296-0518. Please indicate if you would like to be removed from the list of those receiving hard copy by mail. The Bridge newsletter is a monthly publication of Arizona Bridge to Independent Living (ABIL). The Bridge is a free publication. To add or remove your name from our mailing list, or to place a disability related personal or business classified ad, call or write to us at:
The Bridge c/o ABIL
Attention: Editor
1229 E. Washington Street
Phoenix, AZ 85034-1101
(602) 256-2245
1-800-280-2245 (outside the 602, 623, 480, calling areas)
FAX: (602) 254-6407
E-mail: azbridge@abil.org
Website: www.abil.org
ABIL-Thomas office
2345 E. Thomas Rd., Suite #310-A
Phoenix, AZ 85016
(602) 667-0277
FAX 602-667-0318
ABIL Metro Center office
10000 E 31st Ave, Ste # D-405
Phoenix, AZ 85051
(602) 424-4100
FAX 602-424-4118
ABIL-East office
225 E. First Street, Suite #206
Mesa, AZ 85201
(480) 655-9750
FAX (480) 655-9751
Voice/TDD (602) 256-2245
1-800-280-ABIL
(outside the 602, 623,480 calling areas)
FAX (602) 254-6407
e-mail: azbridge@abil.org
Website: www.abil.org
Staff email: First name, initial of last name @abil.org
ABIL Board of Directors
Joseph Mikitish, President
Tom Ringhofer, Vice President
Lynn Houston, Treasurer
Jim Brahaney, Secretary
Marjann Fletcher, Past President
Pamela Allan, Member
Sharon Atwood, Member
William Harper, Member
Ken Heard, Member
Edith Kilany, Member
Edward L. Myers, III, Member
Nicholas L. Perry, Member
Scott Turner, Member
ABIL Administrative Staff
Phil Pangrazio, 296-0513, Executive Director
Feng Chiou, 296-0511, Director of Finance
Maribel Diaz, 296-0515, Receptionist
Maria Deleon, 480-222-4201, Mesa Receptionist/Program Aide
Louise Downey, 296-0519, Accounting Assistant
Nancy Fleming, 296-0512, Billing Clerk
Penny Fore, 296-0518, Executive Assistant
Sandy Guinn, 296-0514, Director of Operations
Tina Hedges, 296-0522, Billing Clerk
Donna Jones, 296-0510, Program Aide
Cathy Lacy, 296-0551, Payroll Clerk
Grace Landas, 296-0516, Billing Clerk
Jason Miller, 296-0539, Billing Assistant
Jay Murrillo, 296-0517, Van Driver, Facilities Maintenance
DeMarQues Thomas, 296-0538, Van Driver, Facilities Maintenance
Advocacy Unit
Donna Redford Kruck, 296-0520, Unit Director
Lynn Bejnar, 667-0277, Ext 16, "This is My Life" Program Manager
David Carey, 296-0523, Advocacy Specialist
Erik Jensen, 296-0527, Work Incentives Specialist
Donna Lorti, 424-4105, Work Incentives Specialist
Ann Pasco, 667-0277, Ext 14, Volunteer Coordinator
Carolan Quenneville, 296-0524, Graphic Specialist/Newsletter
Rhonda Webb, 296-0509, Work Incentives Specialist
Employment Services
Susan Webb, 667-0277, Ext 11, Unit Director
Lynda Connors, 667-0277, Ext. 12, Employment Coordinator
Buffy McDonald, 667-0277, Ext 18, Employment Coordinator
Dan Siegler, 667-0277, Ext 10, Employment Technician
Jennifer Stetson 667-0277, Ext 17, Employment Program Aide
Community Integration Unit
Darrel Christenson , 296-0530, Unit Director
Judy Benshoof, 296-0532, ILA/Home Mod. Coord (Mesa/Tempe)
Fernando Cruz, Reintegration Coord.
Jon DeWinter, 296-0537, Home Mod.Coord.(Glendale/Peoria)
Tony DiRienzi, 296-0534, Early Intervention Coord.
Paula Grodecki, 480-222-4212, Reintegration Coord.
Tyrone Harrington, 424-4103, Com. Liv. Options Coord.
Leanne Jones, 296-0535, Soc/Rec, Youth Outreach/ILA
Rosalie Manuel, 296-0536, Independent Living Skills Advocate
Joanna Savidan, 296-0531, I&R, Home Mod. Coord. (Phx)
Leonard Smith, 296-0533, ILA/Reintegration Prg. Coord.
Personal Assistant Services
Gwen Dean, 296-0541, Unit Director
Mary Avila, 296-0528, PAS Field Rep.
Pam Burdette, 480-222-4204, PAS Field Rep.
Jerry Chee, 602-424-4107, Program Manager
Gerry Davis, 296-0546, Payroll Clerk
Lyndora Hall, 296-0546, PAS Field Rep.
Judy Ludlow, 296-0542, PAS Field Rep.
Teodoro Marquez, 424-4102, PAS Field Rep.
Kelli Martin, 296-0544, Program Aide
Sheri Mecca, 296-0547, Program Manager
Diane Patton, 480-222-4206, Program Manager
Christine Pinedo, 296-0506, Program Aide
Colleen Podmore, 296-0552, PAS Field Rep.
Pat Trouts, 296-0506, Payroll Clerk
Grace Walstad, 602-424-4106, PAS Field Rep.
Roxanna Williams, 424-4106, PAS Field Rep.
Melanie Woods, 480-222-4205, PAS Field Rep.
Christina Velasquez, 602-424-4104, PAS Field Rep.
Bonnie Zanardi, 480-222-4202, PAS Field Rep.
Make a Healthy Start with
"AHCCCS Freedom to Work"
What is "AHCCCS Freedom to Work"?
AHCCCS Freedom to Work is a new AHCCCS coverage group specifically for individuals with disabilities who are employed. The federal Ticket to Work legislation of 1999 allows states to create a Medicaid Buy-in program. The purpose of the "Buy-in" program is to remove healthcare as a barrier to employment for individuals with disabilities.
Who can qualify?
To qualify for AHCCCS Freedom to Work, you must meet the following eligibility requirements:
* Age 16 or over, but under age 65
* Disabled: On SSI,SSDI or equivilant
* Pay the AHCCCS Freedom to Work premium
* Employed
The following income is not counted for AHCCCS Freedom to Work eligibility:
* All unearned income of the person with a disability such as Social Security or Veteran's cash benefits.
* All income (earned and unearned) of the spouse and family members of the person with a disability.
How do I to apply?
If you are already receiving AHCCCS Health Insurance: Just report your employment or earned income changes to your AHCCCS Eligibility Specialist. Your Eligibility Specialist will refer you to AHCCCS Freedom to Work when you no longer qualify under your current program because of your earnings. If you are not receiving AHCCCS Health Insurance you need to apply.
* To apply for AHCCCS, fill out a regular application for AHCCCS Health Insurance (either English or Spanish) that can be found on the AHCCCS website: www.ahcccs.state.az.us by choosing the "download" option, then "applications" or call 602-417-6673 (800-654-8713 "option 6", outside the Phoenix metro area.)
Return completed applications to AHCCCS at the address on the application form or send them to:
AHCCCS Freedom to Work
701 E. Jefferson, MD 7004
Phoenix, AZ 85034
* To apply for Long Term Care Services (ALTCS), apply at your local ALTCS Field Office using the regular ALTCS forms. (ALTCS forms are not on the web site.) ALTCS Field offices are listed at the above AHCCCS website by choosing the "contact us" option and then the appropriate city. Return the completed ALTCS application to the nearest ALTCS Field Office.
BE SURE T0 CALL THE PROGRAM BY ITS NAME: "AHCCCS FREEDOM TO WORK" so they recognize which program you want. If you call, wait on the line for the correct option.
New Medicare Discount Prescription Drug Program
By Carolan Quenneville
Governor Napolitano's new discount prescription drug assistance program for persons on Medicare is up and running. Rx America will be the program manager. They bid for the contract and won the potential business of 600,000 customers on Medicare statewide. They have a network of 500-600 pharmacies across the state.
Some pharmacies such as Fry's and Walgreen's have their own programs that offer prescription drug discounts. It's an open market. You pick which one you want to join, so shop around to see which works best for you.
Eligibility for the Governor's plan under Rx America: You must already be on Medicare. Cost to join: $9.95 per year. Cost of prescriptions: expect a 10 - 80% discount, depending upon the particular medication. How to get started: Call 1-800-770-8014
If you are having problems or your needs are not being met under the Rx America program, let the Governor know. Your feedback on what is not working under this program will lead to changes and improvements. We can make it work!
Call 602-542-4331 or email comments by logging on to www.governor.state.az.us/global/contact.htm azgov@gov.az.state.az.us
Peer Mentor Volunteers Make A Difference
By Ann Pasco
Peer support is one of the core services of an Independent Living Center and in 1990, ABIL expanded its ability to offer this service by establishing the Peer Mentor Volunteer Program.
Peer Mentoring empowers individuals with disabilities to help each other, increase their independence, improve their self-confidence and achieve independent life-styles. Peer Mentor Volunteers assist ABIL consumers (mentees) in achieving independent living goals, such as cooking, budgeting, bus training, housing, employment, socialization, etc. They also help newly disabled individuals to adapt to their disability. Peer Mentors share knowledge, information and help in finding community resources; and they are good listeners who encourage mentees on their path towards greater independence. Since 1990, ABIL has trained over 130 volunteers who have provided thousands of hours of peer mentoring to mentees. Last year alone 48 peer mentor volunteers assisted 100 mentees and provided nearly 1500 hours of peer support.
When we survey our mentees they tell us about the importance of the relationship that develops with their Peer Mentors. They often describe Mentors as role models and friends, someone that they can talk to and who provides encouragement to them. Peer Mentors say that they enjoy the relationship as well, that it has increased their self confidence and their awareness of their rights as a person with a disability. They also believe that they have made a difference in the lives of their mentees.
Recruitment for our program is ongoing to prepare new volunteers to become a part of our program. Our 12 hour training includes sessions on the Independent Living Philosophy, disability awareness, language and etiquette, adjustment to disability, communication, goal planning, and crisis intervention. Our next training is scheduled for October 8th and 9th.
Peer Mentor Volunteers do make a difference! If you would like to get involved, or for more information, please call Ann Pasco at 602-667-0277, ext. 14.
Audition Notice:
Friendly People Pictures is looking for people with disabilities to appear in a Public Service Announcement for Arizona Bridge to Independent Living (ABIL). No experience is necessary; all ages and abilities encouraged to audition. For more information, please call 602-955-7492 or email gifthorse@surfbest.net .
Social Security Work Incentives Q&A
By Erik Jensen
Q: If I receive benefits counseling from one of ABIL's Work Incentive Specialists, am I required to participate in the Ticket to Work program?
A: Absolutely not! Many individuals come to us for benefits counseling before they make a decision about working or using their Ticket. When the federal legislation went through in 1999, it had several different parts. One part was a "Ticket" for individuals on SSI and SSDI that want to go to work full-time or enough to stop receiving cash benefits. Beneficiaries can deposit their Ticket with an Employment Network who will help them find employment and help them problem solve if they have trouble keeping employment or want to change jobs. Vocational Rehabilitation is also an Employment Network in Arizona.
Another aspect of the federal legislation created Benefits Planning, Assistance and Outreach programs in every state. ABIL is the coordinator of this program for the entire state of Arizona. We subcontract with three other Centers for Independent Living in Arizona to help us provide these services. Our Work Incentive Specialists are all trained and certified by Virginia Commonwealth University. A beneficiary can receive our services without depositing their Ticket with an Employment Network.
Our job is to help you understand how employment earnings will affect your cash and medical benefits. We want you to know about the Work Incentives that Social Security rules include that can help you when you work. We can also help you manage your benefits if you go to work. You can decide to work or not after meeting with our trained staff. You can also decide to work full or part time. The decision is up to you. Our job is to help you understand how the Social Security rules apply to work. Your information will be kept confidential. Contact us at (602) 256-2245 and ask for a Work Incentive Specialist.
ADA Teleconference
Accessibility of the Performing Arts:
Assuring Access for Everyone
August 19th
11:00 am- 12:30 pm ABIL/Phx
Speaker: Betty Siegel, Manager of Accessibility,
The John F. Kennedy Center for the Performing Arts, Washington, DC
Last year we talked about ticketing policies, this year we will focus on issues related to ensuring effective communication through the provision of sign language interpreters, audio description, assistive listening devices and alternative formats. Join us as we learn from the experiences of the Kennedy Center and major performance venues across the country that have successfully implemented programs that ensure access for everyone. RSVP to Darrel, 602-296-0530.
Sponsored by Pacific Disability and Business Technical Assistance Center (PDBTAC) http://www.pacdbtac.org
Questions about the ADA?
The Pacific Disability and Business Technical Assistance Center (PDBTAC) can answer questions on all aspects of the ADA and/or provide you with literature in print or alternative formats. Call 1-800-949-4232 or log on to: http://www.pacdbtac.org
I&R Information & Referral
Q&A Question of the Month
Q: Are there any discount energy programs for high electric bills during this triple digit season?
A: Arizona Public Service (APS) has a discount program of up to 30% off the cost of electiricity for customers who are living on a limited income. The less you use, the higher the discount. It is administered through DES. Call (602) 542-6600...Outside Phoenix, 1-800-582-5706.
Salt River Project (SRP) offers $9.00 off your electric cost each month. You can receive an application by calling SRP at (602) 236-8888. It can take up to 30 days to process. Customer Resource Counselors help customers who are having a financial crisis. Call to discuss your unique situation.
If you have a question that you would like to see addressed here, call Joanna Savidan at 602-296-0531
Liz Carabine - Advocate, Peer Mentor, Role Model
By Donna Kruck
Photo taken from the CyberCIL.com webpage where Liz and her service dog "Buddy" demonstrate various tasks done by service dogs.
ABIL is sorry to announce that Liz Carabine, a tremendous disability advocate, died in mid-July. Liz was a stroke survivor and was active with the service dog organizations, the Phoenix Mayor's Commission on Disability Issues, was on the Board of Directors of CyberCIL, and provided advocacy and volunteer time for the Improbable Theatre Company and many other organizations. She was a strong advocate for public transit and expanding affordable, accessible housing options. Liz was an ABIL Peer Mentor Volunteer since 1996. She often did presentations at ABIL physician panels and school presentations and often staffed our information tables, including one at an AZ Diamondback's game last year.
Our sympathy goes out to her family. Liz lived her life fully engaged, was articulate with good humor and demonstrated independent living philosophy in her actions and attitude. We can best celebrate her life by living as she did, fully engaged and working to make things better.
United Way Payroll Deductions Support ABIL Programs
Independent Living and Self-Determination revolve around the ability to make choices. When you donate your dollars to the Valley of the Sun United Way you also have a choice. You have a choice as to where your money goes. Designate ABIL as the recipient of your payroll deducted dollars and you will be supporting these ABIL programs: Early Intervention, Community Reintegration, Community Living Options, and Youth Transition.
Thank you for supporting ABIL! Thank you for supporting the United Way!
Advocacy Presentations/Workshops
All Advocacy presentations are free - Participants must RSVP with David Carey, 602-296-0523. Presentations/Workshops without a minimum of 4 participants are subject to cancellation.
For accommodations or alternative format please call in advance. For ABIL van transportation please call as soon as possible. ABIL requests a $1+ donation (each way) for ABIL van transportation. Consumers must be 18 years+ or own legal guardian.
Social Security Work Incentives
Speakers: Erik Jensen, Rhonda Webb, & Donna Lorti - Work Incentives Specialists. RSVP to 602-296-0510
Workshops for Service Providers
Learn how ABIL's Benefits Planning, Assistance and Outreach program, granted through the Social Security Administration, can help people on SSI and/or SSDI understand how employment affects their cash and medical benefits. Over the last few years, several new work incentives have been created through Social Security and other public programs. Our trained and certified Work Incentive Specialists are also happy to provide presentations at your agency location.
Monday, August 25, 2003 - 10:00 a.m. - 12:00 noon
Location: ABIL East - 225 East 1st Street., Ste. 206, Mesa
Workshops for SSI/SSDI Consumers
Consumers come and learn how employment will affect your cash and medical benefits. Please sign up for the workshop that matches the kind of Social Security you receive. If you are unsure which kind you receive, David can help you figure that out when you call to RSVP. From now on, we will be having separate workshops for each type of benefit: Social Security Disability Insurance (SSDI) or Supplemental Security Income (SSI) because each program has different rules and different work incentives. If you receive both, let David know and he will help you get an appointment with a Work Incentive Specialist. Family members and/or support person are welcome.
Work Incentives & SSDI
Monday, August 11, 2003 - 1:00 p.m. - 3:00 p.m.
Location: 1229 E. Washington St., Phoenix
Work Incentives & SSI
Monday, August 18, 2003 - 10:00 a.m. - 12:00 p.m.
Location: ABIL East - 225 East 1st St., Ste. 206, Mesa
Wednesday, August 20, 2003 - 10:00 a.m. - 12:00 p.m.
Location: Metro Center Office (10000 N. 31st Avenue, Ste. D-405), Phoenix
Friday, August 29, 2003 - 10:00 a.m. - 12:00 p.m.
Location: 1229 E. Washington St., Phoenix
AHCCCS Freedom to Work Program
Learn about the expanded AHCCCS medical coverage for individuals with disabilities 16 through 64 years of age who have countable income under 250% Federal Poverty Level (FPL).
Speaker: Donna Kruck - ABIL's Advocacy Director
Friday, August 22, 2003 - 10:00 a.m. - 12:00 p.m.
Location: 1229 E. Washington St., Phoenix
Emergency Planning for People with Disabilities
People with disabilities need to be included in emergency planning. This 1 1/2 hour workshop will focus on how to advocate for emergency plans that include people with disabilities, as well as tips, tools and techniques for consumers to help themselves during an emergency.
Speaker: Cindy Brown, Training and Program Coordinator - Arizona Office For Americans With Disabilities
Tuesday, August 26, 2003 - 10:00 a.m. - 12:00 p.m.
Location: ABIL East - 225 East 1st St., Ste. 206, Mesa
TRIP Takes August Break
The transit meeting of the East Valley Disability Advocacy Group, will not be held in August. "TRIP" will reconvene on September 8th, from 1:00-3:00 PM at ABIL's Mesa Office. At that time a representative from the Maricopa Association of Governments (MAG) will discuss the 1/2 cent sales tax initiative. On October 13th advocates will hear about how the recent budget cuts will effect Dial-a-Ride.
So have a good August. Try to stay cool and come join us in September as we heat things up in meeting the challenges ahead. For more information on EVDAG/TRIP contact Robert Payne, 480-642-8445 or Mary Hartle-Smith 480-733-5266.
Hotline for Air Travelers with Disabilities
The Toll Free Hotline for air travelers with disabilities is available for callers from 7 a.m. to 11 p.m. Eastern Time, seven days a week. The Hotline serves two main purposes: (1) education and (2) assistance in resolving disability-related air travel problems.
Toll Free Air Travel Hotline
7 a.m. to 11 p.m. EST
1-800-778-4838 (Voice)
1-800-455-9880 (TTY)
Many air travelers with disabilities are not aware of their rights and the Hotline, in part, exists as an educational service to inform air travelers with disabilities about their rights under the Air Carrier Access Act. Hotline operators can provide callers with on the spot general information about the rights of air travelers with disabilities. The Hotline operators also respond to requests for printed consumer information about air travel rights of persons with disabilities.
The Hotline can also assist air travelers with disabilities in resolving real time or upcoming issues with air carriers. Generally, if a caller has a real time problem or an upcoming issue with an air carrier, a Hotline Duty Officer will contact that air carrier and attempt to resolve the issue. For example, there have been a number of incidents in which Hotline Duty Officers have contacted air carriers and convinced them to accept service animals and electric wheelchairs on board flights, to stow folding wheelchairs in the cabin, and to provide requested wheelchair assistance.
Air travelers who want DOT to investigate a complaint about a disability-related issue still must submit their complaint in writing or via e-mail at: airconsumer@ost.dot.gov
Or postal mail to:
Aviation Consumer Protection Division
U.S. Department of Transportation
400 7th Street, S.W.
Washington, D.C. 20590
Book It!
For those of you who enjoy reading you might want to check out www.disabilitiesbooks.com It contains listings of many books, and you can, in some cases find some books which are out of print. Many of the books deal with disability-related issues.
Disability Networking Across Borders
Have you ever wanted to expand your international networking potential? International exchange isn't just for students. Today more and more professionals working in the disability community want to know how they can go about setting up their own exchange. If you are one of a growing number of such individuals, the National Clearinghouse on Disability and Exchange (NCDE) has ideas for you.
The NCDE started Disability Networking Across Borders, an initiative for professionals working in disability organizations who want to further their cross-cultural knowledge and resources. This project provides guidelines on how to arrange international exchange opportunities with colleagues in other countries. The tools used in accomplishing this goal include an online bulletin board and a resource publication. The bulletin board will serve as an outlet for people with disabilities and disability professionals to communicate information about their organizations and the types of international exchanges they want to create. Fill out the online form to post messages requesting partners to conduct exchange programs with. A compilation of organizations requesting exchange partners will be posted.
The resource guide, Disability Networking Across Borders: Tips and Resources for Creating Short-Term International Exchange Programs, includes referrals to exchange organizations that could provide assistance in arranging programs. This step-by-step publication lays out ideas for funding, finding partners and handling logistical concerns as well as several other topics. To view the guide or to request exchange partners, go to www.miusa.org, click on "Disability and International Exchange Professionals" and scroll down the page to "Disability Networking Across Borders."
NCDE is managed by Mobility International USA and sponsored by the Bureau of Educational and Cultural Affairs of the United States Department of State.
For further information, contact:
NCD
PO Box 10767
Eugene, OR 97440
(541) 343-1284 (V/TTY)
(541) 343-6812 (fax)
clearinghouse@miusa.org.
Empowering Youth
Independent Living Skills Workshops
The Empowering Youth with Disabilities into Adulthood/Youth Transition Program brings in community resources to teach independent living skills to young adults ages 14-22. If you or your high school group would like to attend or schedule any of these, please call Leanne Jones at 602-296-0535 to RSVP. For accommodations or alternative format please call Leanne in advance.
NCD Bulletin
A Monthly Publication of the National Council on Disability (NCD)
The Bulletin, which is free of charge, and at NCD's award-winning Web site (www.ncd.gov), brings you the latest issues and news affecting people with disabilities. To subscribe to the NCD listserv, send a blank e-mail to add-bulletin@list.ncd.gov . No need to write anything in the subject line or body.
NCD - Celebrating 25 Years of Empowerment, 1978-2003
ABIL Community Calendar - RSVP for All Events
Funding for Social and Recreational activities is provided (in part) by the Area Agency on Aging, Region I, Inc. and the Arizona Department of Economic Security. ABIL requests a $1+ donation (each way) for transportation provided on the ABIL van. Consumers must be 18 years+ or own legal guardian for ABIL van transportation. Please do not wear scented products or smoke when attending events. Reasonable Accommodations, including Sign Language Interpreters and Personal Assistants, will be provided at ABIL events upon request.
Aug 5 SR/Bowling, 12:00 - 3:00 PM. Enjoy an afternoon of fun and bowling. Bowling ramps will be provided. AMF Bowling Center, 4407 S. Rural Road, Tempe. Cost: $3.00 per game. Leanne Jones, 602-296-0535
Aug 11 SSDI/Social Security Work Incentives, 1- 3:00 PM. Phx/Kitchen. Learn how employment will affect your cash and SSDI medical benefits. David Carey, 602-296-0523
Aug 14 SR/Movie Theater, 10:30 AM- 2:00 PM. 7700 W Arrowhead Towne Center. Glendale. Cost: $7.00 per person. Leanne Jones, 602-296-0535
Aug 14 V.O.I.C.E., 1- 4:00 PM. A monthly support group for persons with disabilities, their families and rehabilitation providers., 19055 N. 57th Ave., Glendale. Clayton Guffey. 602-789-9129.
Aug 15 COMPASS, 2:00-4:30 PM. Providing direction and networking to persons with disabilities. 7375 E. 2nd St., Bldg. 2, Rm. 5, Scottsdale. Susan DeNova, 602-470-1802.
Aug 18 SSI/Social Security Work Incentives, 10:00 AM - 12:00 PM. Mesa/Classroom. Learn how employment will affect your SSI cash and medical benefits. David Carey, 602-296-0523
Aug 19 PDBTAC Teleconference, 11:00 AM-12:30 PM. Phx Kitchen. "Accessibility of the Performing Arts; Assuring access for everyone. Details on page 6. Darrel Christenson, 602-296-0530
Aug 20 SSI/Social Security Work Incentives, 10:00AM - 12:00 PM. Metro/Classroom. Learn how employment will affect your SSI cash and medical benefits. David Carey, 602-296-0523
Aug 20 SR/Cooking Group, 10:30- 1:30 PM. Phx/Kitchen. Leanne Jones, 602-296-0535
Aug 22 AHCCCS Ticket to Work Presentation, 10:00 -12:00. Phx/Kitchen. Learn about the expanded AHCCCS medical coverage for individuals with disabilities 16 through 64 years of age who have countable income under 250% Federal Poverty Level (FPL). David Carey, 602-296-0523
Aug 25 Social Security Work Incentives for Service Providers, 10:00-12:00. Mesa/Classroom. Learn how ABIL's Benefits Planning, Assistance and Outreach program, can help people on SSI and/or SSDI understand how employment affects their cash and medical benefits. David Carey, 602-296-0523
Aug 25 SR/Newsletter Assembly Party, 9:00- 3:00 PM. Phx/Kitchen. Leanne Jones, 602-296-0535
Aug 26 Emergency Planning for People with Disabilities, 10:00 -12:00. Mesa/Classroom. Learn how to advocate for emergency plans that include people with disabilities, as well as tips, tools and techniques for consumers to help themselves during an emergency. David Carey, 602-296-0523
Aug 27 Healer Within, 9:30-12:00PM. Thomas/Conf Room. Women's Wellness Group - Using Mind, Body & Spirit to have a satisfying life. Relaxation exercises and confidential sharing. Donna Kruck, 602-296-0520
Aug 29 SSI/Social Security Work Incentives, 10:00 -12:00. Phx/Kitchen. Learn how employment will affect your SSI cash and medical benefits. David Carey, 602-296-0523
ABIL Soc/Rec Events, September - October 2003
Contact Leanne, 602-296-0535
Transportation is limited. Please RSVP at your earliest possible convenience. Consumers must be 18 years+ or own legal guardian for transportation. ABIL requests a $1+ donation (each way) for transportation provided on the ABIL van.
Wednesday, September 3, 10:00 am - 2:00 pm. Arizona Science Center - Come explore the natures/history of science. 600 E Washington. Phx. Cost: $9.00 adults, $7:00 seniors.
Tuesday, September 9, 10:00 am - 2:00 pm. Arts & Crafts Group. Come be creative with Arts and Crafts projects. 1229 E. Washington. Phoenix. Cost: $2.00
Friday, September 19, 11:00 am - 2:00 pm. Casino Arizona. Come join us to spend a little money. 524 N 92nd St. Scottsdale. Cost: Bring money to spend.
Monday, September 22, 9:00 am - 3:00 pm. Newsletter Party (lunch provided) - Join the fun of meeting new people, sharing experiences and working towards a goal of sharing the Bridge with others throughout the states. 1229 E Washington, Phx. Cost: None.
Tuesday, October 7, 10:00 am - 2:00 pm. Chandler Center for the Arts: The Artwork of Suzanne Klotz: Checkpoints and Revisions. 250 N Arizona Ave. Chandler. Cost: free.
Tuesday, October 14, 12:00 pm - 3:00 pm. Arizona State Fair - 1826 W McDowell Rd, Phx.
Wednesday, October 22, 1:00 pm - 3:00 pm. Cooking Group - Learn new recipes, skills and just socialize with others. Each month we have a luncheon theme. 1229 E Washington. Phx. Cost: Consumers assist by bringing ingredients for lunch.
Monday, October 27, 9:00 am - 3:00 pm. Newsletter Party (lunch provided) - Join the fun of meeting new people, sharing experiences and working towards a goal of sharing the Bridge with others throughout the states. 1229 E Washington, Phx. Cost: None.
Classified Ads Next ad deadline: August 13th
Call 602-296-0524 or send by email marked "Want Ad" to carolanq@abil.org ABIL provides space for individuals to place personal disability related ads free of charge and is not responsible for the quality of advertised items or services. The fee for a disability related business ad is $25. Please call to renew ads.
For Sale:
'89 Ford Econoline Van 150, w/Ricon Lift, and hand controls. 69k miles. Good condition. $5500 OBO. Oxy-lite portable oxygen machine, model 301, w/ 4oxygen tanks. Asking $300. Hoyer Lift, 400 lb capacity. $150. Call 602-522-2581.
'90 Cad Fleetwood, RWD, 5.7 350 motor. Runs great. Gold package. Scooter lift & scooter. $4000 OBO. Nick, 480-225-4567.
'99 Dodge Caravan w/ automatic ramp, and automatic tie downs. Runs like new. Needs some body work but not much. $25,000 OBO. Call Ken, 602-266-6770.
'00 Dodge Grand Caravan, power side ramp Braun conversion with 6-way power transfer seat and hand controls. 32K miles with warranty left. $29,500. Call Rich, 602-494-8257.
'02 Dodge Grand Caravan EX, V-8 w/dual climate control, auto wheelchair ramp w/tilt option, removable passenger & driver seats, 3-4 wheelchairs, easylock retractable system, optional load leveling, remote control entry, power kneel and more, under 17K miles, asking $33,500 OBO. Call Jimmy @ 480-329-3715 or 602-684-1949.
3-wheel scooter w/charger, $300. Call Melissa, 480-731-9933, (C) 480-332-2316.
Pride Sidekick 3-whl scooter, on board charger, new batteries, exlnt cond. $600. Denise 480-917-9592.
Jazzy 1103 power chair w/turning radius. Asking $1000 OBO. Caryl, 480-732-7134.
Jazzy 1122 power chair, still under warranty, heavy duty, indoor/outdoor, hi-back, reclining seat. Asking $2,500. Call Joe, 623-815-1468.
Invacare power chair, lite wt, teal color, needs batteries. $200 OBO. Call Pam or Denise, 623-848-1456.
Gently used '95 Action 9000 pwr chair, gel cushion, elevated foot rests, contour back. 20" wide, for smaller person. Good cond. $3,000. Leave message w/Suzanne 602-336-0372.
"Permobil" power chair, aka "The Chairman" multi-position seating system. Got it in '97, hardly used, like new, needs batteries & air in tires. Controls on left, headrest, 18" back. Originally $14,898, asking $750.Call Kathleen 480-837-0588 or 602-273-5284 (pgr/msg)
Pride Jazzy powerchair, 1121 series. 4 yrs old - spent mostly in storage. Gell batteries, adjustment springs allow mobility over 4" rise. Leather seating, joy stick control, great shape. $2000 OBO. Call Cindy, 480-507-0112.
Pride luxury recliner lift chair w/hand control. Used only 2 wks. Like new. Pd $850, asking $350. Call Ron, 623-334-1293.
Invacare Ranger X power wheelchair, tilt. Comes w/battery charger & roho cushion. Like new, used only 2 months. Original cost $13,400. Asking $2,700 OBO. Call 480-890-0878, Mon - Fri, 9-5, ask for Paul
Brand new shower chair, w/handles, comfort seat, non-rusting legs. $30. Kate, 480-998-1877.
Pace electric scooter, 7 yrs old, fair cond.,$500. Merits pwr chair w/lift, $800. 2 walkers, 4-pronged cane, scooter basket, $10 each. Gilbert area. Call JoAnn, early AM, 480-545-7737 or 602-695-4007.
Twin size Craftmatic bed w/electric controls to raise top or bottom of bed. No side rails. Mattress is clean. Comes w/one bottom knit sheet. Buyer will have to pick up from seller's home in central Phoenix. It is heavy. Asking $250. 602-469-7595.
Wheelchair accessible home, single level ranch w/laminate wood flooring, dome ceiling in kitchen, roll-in shower, wide doors, 2BD/BA. Carport fits vehicle w/ramp or lift. Lrg rooms & lot. Maryvale. $114,900. Pam or Denise, 623-848-1456.
Fully wheelchair accessible apartments. Newly remodeled for accessibility, everything new. 2BR/1BA. Tempe. Accept section 8 or rental assistance. Morris, 480-329-7821
Wheelchair accessible home at The Point, S. Mt., main floor, master BR/BA modified for whlcr. 3BR/BA, great room w/fireplace, eat in kitchen & formal dining room, low SRP energy use, 2 car garage, 2,446 sqft., lrg backyard, covered patio, Mtn views. $309,900. Joyce, (c) 480-223-3076 or 480-759-4801.
Accessible Patio home. E. Mesa, off Recker/McKellips. 2BD/2BA. Wide doors, raised toilet, hand rails in master BA. Master BR/patio door. Great neighbors. Before/after pix show improvements. Wallpaper, flooring,kitchen appliances -all fairly new, 2 yr old carpet, was a non smoking home. $99,900 OBO. Email: jenniferpfromkc@comcast.net
Accessible Home. Beautiful, custom built, 2545sqft, North Phoenix, 3BR + den/2BA, lots of upgrades, lowered counters, roll-in-shower, security system & intercom at front door, 3 car garage, spa. $289,000. For more details call 602-468-1153 or 480-941-2933.
Wanted/Seeking:
Full size van, Hi-top with rear lift. Call Bill, 480-857-9178.
Exercise equipment, "Flexsizer", tilt table, Sci-fit Pro II or any other equipment for a person with a disability. Price negotiable. Call Elsa, 480-423-6105 (mornings), 602- 504-0450.
Live-in/Caregiver. Mature, 49 yr old man w/disability, seeking a Live-in/Caregiver. I have a beautiful home. I am financially stable and have a professional career. Person must be a non-smoker, non-drinker and have a driver's license. Ocotillo area of south Chandler. Call Dan, 480-786-5029
Roommate. 32 yr old naturopathic student seeking
chemically-sensitive, or chemically-sensitive-friendly
roomate to share housing, central-east Tempe (near Broadway and 101). I have a number of leads. Contact Cric at 703-370-9109 or email: silvercowboy2000@yahoo.com
Roommate, male or female. Dbl wide accessible mobile home w/room to rent. Glendale area. $350 per mo, Utilities incl. Call Robert, 613-847-2484.
Services:
Experienced personal caregiver. Mature female w/ 20 yrs exp., certified in NY, references available. Call Rosalee, 602-862-9793
Empower Listserv members - If you have a change in email address please forward it to: azbridge@abil.org If we get your emails returned a few days in a row we automatically take you off the listserv. You will need to contact us to be added back on when your email is up and running again.
Thank You Friends!
DependABIL
Jim Webb
Max Dine,
Behavioral Health Consumers in Action Inc.
BECOME A FRIEND OF ABIL TODAY!!
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Thank You!
Top Ten Things to do in a Dust Storm
By Carolan Quenneville
10. Open your windows and re-enact "Lawrence of Arabia" in your living room
9. Stick your face out the window and get a sandblast facial
8. Open up a six pack of Endust
7. Plan an expedition to find the lost island of Atlantis in your pool
6. File suit against UPS for all the excess 'brown'
5. Apply for a scientific grant to study the possible link between dust devils and dust bunnies
4. Trade in your vacuum cleaner for a rototiller
3. Inquire as to why they name hurricanes and not "Haboobs"
2. Revert to your adolescence and contemplate the hilarity of a word like "Haboob"
1. Realize it could be worse and remember our troops in Iraq
[The opinions expressed here are not those of ABIL Management, the board of directors, staff, or anyone else for that matter. Well, maybe but no one will admit it.]
Special Insert:
Emergency Planning for People with Disabilities
People with disabilities need to be included in emergency planning. This insert and one of this months Advocacy workshops (See page 7) focuses on emergency preparedness and how to advocate for emergency plans that include people with disabilities. Included in this insert are emergency preparedness checklists for people with disabilities and their service dogs provided by the Arizona Office of the Americans with Disabilities Act (insert pages 3-4) and excerpts of the booklet, "Emergency Evacuation Preparedness, Taking Responsibility for Your Safety, A Guide for People with Disabilities and Other Activity Limitations." In the booklet you will find information on:
Introduction
� How to determine if you may need assistance in an emergency evacuation.
� Why it is important to focus on evacuation issues for people with disabilities and activity limitations.
Evacuation Preparedness
� How to take responsibility for your safety.
� What the law says.
� How to get involved in the planning process.
� How to create, review and practice plans.
� Why it is important to practice plans through regular drills including walk through procedures, announced drills and surprise drills.
� Why it is important to carry with you emergency health information. See accompanying form
� How to realistically evaluate your needs.
Quick Information on How Best to Assist You
� How to give first responders quick crucial information on how they can assist you without causing injury.
� How to practice explaining how people can best assist you.
� How to be clear, specific and concise.
Establishing a Personal Support Network
How to put together a network of individuals who will check with you in an emergency and give assistance if needed.
Ability Self-Assessment
� How to evaluate your abilities, preparedness, limitations, needs, and your surroundings, to determine what type of help you will need.
� About specific issues to evaluate if you have any of these limitations:
� sight � hearing � deaf-blind � speech � memory, judgment, learning, information processing,
� physical / mobility � allergies, multiple chemical sensitivities (mcs) � use an assistive device.
Evacuation Options
� How to determine all your evacuation options and prioritize them:
� Being carried � Using evacuation chairs � Using area of refuge/rescue assistance
� Using elevators � Determining options when traveling
� Creating an emergency plan for your home.
Required citation:
Kailes, June Isaacson. Evacuation Preparedness: Taking Responsibility For Your Safety: A Guide For People With Disabilities and Other Activity Limitations, 2002. Published and distributed by Center for Disability Issues and the Health Professions, Western University of Health Sciences, 309 E. Second Street, Pomona, CA 91766-1854, Voice: (909) 469-5380, TTY: (909) 469-5520, Fax: (909) 469-5407, Email: evac@westernu.edu.
This material is also available at http://www.cdihp.org, or for a hard copy, send a check payable to "CDIHP" for $24.00 {includes shipping, handling and applicable tax} to the address above. Call CDIHP for pricing on bulk or international orders.
Emergency Health Information
Emergency Health Information
Date:
Updated:
Name
Address
City
State
Zip
CONTACT METHOD
Phone:
Home
Work
Cell:
Fax:
E-mail:
Birth Date
Blood Type
Social Security No.
Health Plan Individual #:
Group #:
Emergency Contact:
Name
Address
City
State
Zip
CONTACT METHOD
Phone:
Home
Work
E-mail:
Fax:
Cell:
Primary Care Provider:
Address
City
State
Zip
Phone:
Fax:
E-mail
Disability/Conditions:
Medication:
Allergies:
Immunizations
Dates
Immunizations
Dates
Communication / Devices/ Equipment / Other:
Excerpted from Be a Savvy Health Care Consumer, Your Life May Depend on It! (c) 2002 by June Isaacson Kailes, For more information about this guide, contact jik@a pacbell.net or visit http://www.jlk.com/resource.html.
Emergency Preparedness for People with Disabilities
Compiled by the Arizona Office for Americans with Disabilities
1-800-358-3617, 602-542-6276 or 602-542-6686 TTY
PLAN AHEAD:
??Customize an emergency health information card. Keep copies in wallet, purse and emergency supply kits. Contact the AZ office of the ADA at the numbers listed above for a sample.
??Develop a "buddy" system with family, friends, neighbors, or co-workers. Plan how you will help each other in an emergency.
??Prepare an "emergency go kit" that you could grab and take with you if there is a need to evacuate. Include necessary medications, basic toiletries, any special sanitary aids, and whom to contact in emergencies.
??Make a list of your medications, allergies, special equipment, doctor's number,. and whom to contact in emergencies. People who have difficulty with communication should have other important information written out, such as special toileting needs, or how to lift or move them. Give a copy to each buddy, keep a copy with you, and put a copy in your go kit (above).
??Pick one out-of-state and one local friend or relative for family and others to call if separated. Identify a location where you can reunite with family/friends.
??Maintain a seven-day supply of essential medications.
??Master the skill of giving quick information on how best to assist you.
PLAN YOUR ESCAPE:
??Determine at least two usable exits from each room and from your building.
??Make a plan with your personal care attendant. If you use an attendant from an agency, see if the agency has special provisions for emergencies.
??Conduct an "ability self-assessment" - can you operate fire extinguishers, turn off water, gas, etc.?
??Learn what to do in case of power outages and personal injuries. Know how to connect or start a back-up power supply for essential medical equipment.
??Learn your community's warning procedures, evacuation plans, and shelter locations.
Many communities ask people with a disability to register, so that needed help can be provided quickly in an emergency. Please contact the Arizona Office for Americans with Disabilities at the phone numbers listed above for more information about establishing such a voluntary registry for Arizona communities.
Emergency Preparedness Tips for Service Animal and Pet Owners
??Make sure that I.D. tags and licenses are current.
??Have an animal care plan - who will care for your pet if you are evacuated? Pets, unlike service animals, may not be allowed in emergency shelters.
??Be prepared to function without assistance from a service animal - identify alternate mobility aids.
??Assemble service animal's emergency kit - bowl for water, extra food etc.
THE MOST IMPORTANT THINGS TO HAVE:
? Bottled water (3 gallons per person in small, easy open bottles)
? Several flashlights (By the bed and around the house; electricity may be out)
? One week supply of medicines (rotated regularly) and instructions for use - dosage, frequency, doctor's name and phone; post this information on your refrigerator under the heading EMERGENCY INSTRUCTIONS.
? First aid kit
? Shoes under the bed (To protect feet from broken glass - windows, lamps, etc.)
? Fire extinguisher (Know how to use it)
? Smoke alarm (Check the battery once a year; for people who are hard of hearing consider a flashing light alarm)
? Battery operated radio or TV (To listen for information about the disaster)
? Whistle or loud bell (To attract attention)
? Wrench for gas turn-off (Use only if you or someone else smells gas)
? Garbage bags (For personal waste)
OTHER IMPORTANT THINGS YOU MAY NEED:
? Non perishable, ready to eat food (canned food and juices, dried fruit, crackers, etc.)
? Manual can opener (Electricity may not be available)
? Extra eye glasses, hearing aid, mobility aids, etc. (For equipment damage)
? Extra blankets (With electricity out you may not have heat)
? Toilet paper, paper towels, paper plates, personal hygiene supplies
? Pet food and extra water for pets or service animal
OTHER GOOD-TO-HAVE SUPPLIES:
? Rubber or heavy gloves, broom, etc. (To clean up broken glass)
? Duct tape, masking tape
? Money (Banks may be closed)
ABIL Website: www.abil.org
Join ABIL's advocacy list-serv "Empower!" by sending an E-mail to azbridge@abil.org.
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The ABIL office is a fragrance-free, tobacco-free environment.
Please do not wear scented products or smoke when visiting our center. Thank you.
The Bridge is available in alternate formats, including Braille, large print and audio cassette for persons with visual impairments. To receive the Bridge in alternative format or reasonable accommodation at events, call 256-2245.
Want to be added to the mailing list? Have a change of address?
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Contact ABIL at: (602) 256-2245 1-800-290-2245
Arizona Bridge to Independent Living, 1229 E. Washington Street, Phoenix, AZ 85034-1101
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